| Summary |
The Nelson Mandela Childrens Fund (NMCF) has, through the Goelama Programme since 2002,
funded non-governmental organisations to support orphans and vulnerable children. The focus has
been on strengthening households and support systems for orphans and vulnerable children (OVC),
promoting behaviour change to prevent further spread of HIV, and enhancing integration with local
government services. Based on the fact that many children, including orphans, are dying of AIDS,
without appropriate palliative care, an expansion of the NMCF Goelama approach is being developed.
This is a collaboration between the Diana, Princess of Wales, Memorial Fund, the NMCF and the Hospice
Association of South Africa. |
| More Details |
In order to identify potentially effective models of home-based care (HBC) within which paediatric
palliative care could be integrated, and to identify critical aspects requiring strengthening, the NMCF
commissioned an in-depth evaluation of three NGOs that have been supported through the Goelama
Programme. These are:
- Centre for Positive Care (based in Sibasa in the Vhembe district of Limpopo)
- Thembalethu Home Based Care (based in Schoemansdal in the Nkomazi district of
Mpumalanga)
- The Zululand Hospice (based in Richards Bay focusing on the Enseleni area).
The Health Systems Trust (HST) was contracted to carry out the evaluation, and worked with the School
of Health Systems and Public Health (SHSPH), University of Pretoria. HST conceptualised the evaluation
and undertook the overall management of the project. SHSPH undertook the planning, data collection,
analysis and report writing. HST organised and facilitated a national seminar on paediatric palliative
care where the results of the evaluation were discussed with national role-players, and finalised the
evaluation report for the NMCF.
The objectives of the evaluation were:
- To evaluate the current capacity of the three HBC projects to provide paediatric palliative
care as a component of overall HBC. This focused on the overall management of the projects,
as well as the competencies of carers to provide both general HBC and palliative care to
children.
- To explore the possibilities for strengthening the provision of paediatric palliative care as an
integrated component of HBC.
- To explore the role of home-based carers and HBC projects in the provision of ART to
children.
Although the evaluation focused on the three HBC projects, it is expected that the recommendations
will have relevance for HBC programmes in general. |
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| Keywords |
This Item is associated with the Following
Keywords: Research, home based care. |
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